Decentralized initiatives for the exchange of patient data

There is no central authority and no certified way in which data exchange takes place between different organizations in the Netherlands. This resulted in various decentralized initiatives aiming to exchange patient data. In addition, we are working on agreements and standards in order to connect these systems. Some examples of the decentralized initiatives are “MedMij”, “VIPP”, “PATIENTConnect” and “Registratie aan de Bron”. These programs are briefly explained below.

MedMij

National trust framework on information exchange between a Personal Health Environment (PGO) and a healthcare institution The Ministry of Health, Welfare and Sport has started the MedMij program together with the Dutch Patients’ Federation, Nictiz and the Care associations. MedMij is an agreement system aimed at the safe exchange of health information. It is a framework of agreements and standards that are represented governmental in the so-called ‘Information Consultation’ (IB), a partnership without further legal entity.

Medmij: National trust framework on information exchange between a Personal Health Environment (PGO) and a healthcare institution

Aim of MedMij

The aim of the MedMij program is to collect and use health data from and for patients within a self-chosen health environment. Before such an environment may be used, the systems of the Personal health environments and the environments of health care organizations must comply with MedMij’s agreements. However, it is important to state that MedMij do not make Personal Health Environments themselves and do not determine which functions are available within a Personal Health Environment. This will be decided by the provider. In cooperation with other organizations in the health care sector, the program determines the agreements with which a safe and trusted way of collecting and exchanging data is secured. The aim is to have the self-determination of own data realized for everyone in 2020. VZVZ, an organization aimed at health care communication, currently explores how applicable MedMij’s designed architectures are in practical situations. They explore these architectures in the PROVES project. The exploration involves looking at the operation (manufacturability and feasibility) of the components of the MedMij agreement system. One of those components is to investigate how the LSP can connect to MedMij’s requirements. More information about MedMij or VZVZ can be found on:

Data exchange by hospitals: VIPP

With the VIPP program, hospitals and institutions for medical specialists want to realize: 1) data exchange with the patient 2) data exchange between professionals and with the patient regarding medication. The aim is to give everyone digital access to their own medical data by the year of 2020. The VIPP program was developed by the Dutch Association of Hospitals (NVZ), in collaboration with the Ministry of Health, Welfare and Sport.

Data exchange by the Dutch association of mental health and addiction care: @PATIENTconnect

The @PATIENTconnect program aims to strengthen the provision of information and eHealth in mental health care in the Netherlands. With the program, the ICT of the GGZ, the main organization for mental healthcare, is set up in such a way that patients themselves have access to their digital data and the use of eHealth is increased. Furthermore, the data exchange within the entire care sector is supported, starting with medication safety. The arrangement is similar to the VIPP arrangement for hospitals.

Improvement of care through information from the care process: Registratie aan de Bron

In the Registratie aan de Bron program, care partners cooperate to improve the care by recording information from the care process unambiguously for multiple use. This usage includes direct patient care, transfer within and between healthcare institutions, scientific research, delivery to quality records and administration. If information is unambiguously recorded in the care process, patients and caregivers can have access to the required care information anytime and anywhere. The program is an initiative of the eight academic hospitals and Nictiz.